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News &
Advocacy in Disability Rights |
| MAINSTREAM
Magazine published a print version from 1975 until the final issue in December
1998/January 1999. The online archive includes, at present, selected features from the
print magazines, as well as additional features. Chose a year and view the table of
contents from the issues of that year.
From Mainstream Online news & commentaries -- 2001-2003 -----------------------------------------------------------
What Would Justin Say? --March 14, 2003
The final chapter of Her book fills a void. Weve
got Joseph Shapiros excellent No Pity, which
chronicles the struggle for and eventual adoption of the Americans with Disabilities Act
of 1990 ( Johnson explains how the undermining process has been aided by
pundits such as John Stossel, John Leo, Doug Bandow, Edward Hudgins, and James Bovard, by
celebrities such as Christopher Reeve and Clint Eastwood, by Congress, and by the US
Supreme Court. It began as the ADA developed
from bill to law, continued as President George H. W. Bush (whod signed it into law)
by 1992 was promising reforms so that the able-bodied worked, and continued as
the far right narrowly applied cost-benefit analyses to rationalize continued disability
discrimination Misunderstanding by celebrities, as Johnson points out, is shared by
members of the US Supreme Court. In wrongly
construing the Make Them Go Away is available from Advocado Press. -- Thursday, January 9, 2003
There is abuse, and then there is abuse The GAO reports that people are seriously abused in one out of five nursing homes in this country -- that's 20 percent. (Read Robert Pear's story in the New York Times online at http://www.nytimes.com/2002/03/03/national/03NURS.html (free registration required)).And much abuse is unreported and abusers often go unpunished. No wonder studies show people don't ever want to go into a nursing home. The Bush Administration doesn't want to increase staffing at nursing homes. In a way, that's a good thing. But the Adminstration wants market forces to bring nursing homes into line and be better and more efficient. The trouble is, of course, that the government itself has built in a bias toward nursing homes and pours billions of dollars into these awful institutions every year. Community and home-based services offer a much preferred alternative, but efforts to get these services established in law -- MiCASSA being the prime example here -- are blocked and stymied in the Congress. It couldn't be that the nursing home lobby is opposed, could it? Why would they want to preserve their privileged position when great alternative choice could be available? The real abuse is the failure of the political leadership of this nation to provide the people what they want -- real choice in getting the services that they need. --3/5/02 --2/20/02 Access .... and Evacuation. We have fought so long and hard for access that we have given less consideration to getting out, exiting, evacuation. The attacks on New York and Washington on September 11 have sharply reminded us of the need for such concern. We have seen the reports of two men carrying a wheelchair user down 60-plus flights of stairs, of a blind man and his dog joining the stream of refugees in the stairwells, and of the man with quadriplegia stranded on the 27th floor waiting for help that never came. And there were other reports of fleeing non-disabled people seeing disabled people stranded, a roomful one report said. Were there any procedures in place for the safe evacuation of people with disabilities? Whose responsibility is it? The building owners? The employers? Are there any rules or regulations? The Federal Emergency Management Agency makes some recommendations (FEMA). Several years ago, MAINSTREAM published articles on disaster preparedness. Several years ago, when I worked in the third-floor newsroom of the San Diego Union, someone thought about the need for an emergency evacuation plan. I think a drill was even run. Two people in the newsroom were designated to get me out, taking me from my wheelchair and carrying me down the stairs. We did not practice. No emergencies requiring real implementation of this plan ever
occurred during my years at the newspaper. But I did wonder whether it would work, at
least for me. What if the designated colleagues were not around when the emergency
struck? One wisp of hope: The newsroom, as mentioned, was on the third floor,
well within range of fire-truck ladders. If I could hold on long enough for rescuers to
arrive, I might survive. Those fire truck ladders are a handy measure for people with disabilities. Ive operated on the principle of not working or living at any level higher than those ladders can reach. And I am not comfortable even visiting beyond those levels. Now that people with disabilities are moving into the workplace in increasing numbers and as we move more visibly through the general activities of daily life, it is time to think seriously and hard about ways to ensure our safety in public and private places. Again, the notions of Universal Design should inform our efforts. When we address the requirements of public safety, it is essential that we include all of us. -- written May 30, 2001
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